When “Good Enough” Isn’t Good Enough: Interdisciplinary Perspectives on Caring for Adults Using Substances at the End of Life

Lorna Templeton, Sarah Galvani*, Marian Peacock

*Corresponding author for this work

Research output: Contribution to journalArticle (journal)peer-review

1 Citation (Scopus)

Abstract

This paper draws on data from one strand of a six-strand, exploratory study on end of life care for adults using substances (AUS). It presents data from the key informant (KI) strand of the study that aimed to identify models of practice in the UK. Participant recruitment was purposive and used snowball sampling to recruit KIs from a range of health and social care, policy and practice backgrounds. Data were collected in 2016–2017 from 20 KIs using a semi-structured interview approach. The data were analysed using template analysis as discussed by King (2012). This paper focusses on two of seven resulting themes, namely “Definitions and perceptions of key terms” in end of life care and substance use sectors, and “Service commissioning and delivery.” The KIs demonstrated dedicated individual practice, but were critical of the systemic failure to provide adequate direction and resources to support people using substances at the end of their lives.

Original languageEnglish
Pages (from-to)1311-1324
Number of pages14
JournalInternational Journal of Mental Health and Addiction
Volume20
Issue number3
DOIs
Publication statusPublished - 30 Jun 2022

Keywords

  • Alcohol
  • Drugs
  • Dying
  • End of life
  • Palliative
  • Substance use

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