Background: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow-up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). Methods: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. Results: There were 2136 patients with a median total number of PCI items selected of 5 (2-10). “Fear of the cancer returning” (39%) and “dry mouth” (37%) were most common. Twenty-five percent (524) reported less than good QOL. Conclusion: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case-mix variables. There was a strong progressive association between the number of PCI items and QOL.
- head and neck cancer, patient concerns inventory, patient prompt list, quality of life
ROGERS, SIMON., Alvear, A., Anesi, A., Babin, E., Balik, A., Batstone, M., Brockmeyer, P., Carrasco, C., Chien, C-Y., Chirila, M., Dholam, K., & Doss, J. (2019). Variations in concerns reported on the Patient Concerns Inventory (PCI) in head and neck cancer patients from different health settings across the world. Head and Neck. https://doi.org/10.1002/hed.26027