Variations in concerns reported on the Patient Concerns Inventory (PCI) in head and neck cancer patients from different health settings across the world

SIMON ROGERS, Alvaro Alvear, Alexandre Anesi, Emmanuel Babin, Ali Balik, Martin Batstone, Phillipp Brockmeyer, Claudia Carrasco, Chih-Yen Chien, Magdalena Chirila, Kanchan Dholam, Jennifer Doss

    Research output: Contribution to journalArticle

    3 Citations (Scopus)
    46 Downloads (Pure)

    Abstract

    Background: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow-up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). Methods: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. Results: There were 2136 patients with a median total number of PCI items selected of 5 (2-10). “Fear of the cancer returning” (39%) and “dry mouth” (37%) were most common. Twenty-five percent (524) reported less than good QOL. Conclusion: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case-mix variables. There was a strong progressive association between the number of PCI items and QOL.
    Original languageEnglish
    JournalHead and Neck
    Early online date13 Dec 2019
    DOIs
    Publication statusE-pub ahead of print - 13 Dec 2019

    Keywords

    • head and neck cancer, patient concerns inventory, patient prompt list, quality of life

    Fingerprint Dive into the research topics of 'Variations in concerns reported on the Patient Concerns Inventory (PCI) in head and neck cancer patients from different health settings across the world'. Together they form a unique fingerprint.

  • Cite this

    ROGERS, SIMON., Alvear, A., Anesi, A., Babin, E., Balik, A., Batstone, M., Brockmeyer, P., Carrasco, C., Chien, C-Y., Chirila, M., Dholam, K., & Doss, J. (2019). Variations in concerns reported on the Patient Concerns Inventory (PCI) in head and neck cancer patients from different health settings across the world. Head and Neck. https://doi.org/10.1002/hed.26027