Using PROMs to guide patients and practitioners through the head and neck cancer journey

Simon Rogers, Brittany Barber

Research output: Contribution to journalArticle

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Abstract

The measurement of patient-reported outcome measures (PROMs) following head and neck cancer (HNC) has the capacity to substantially enhance the care of patients and their care-givers following the diagnosis and treatment of HNC. Literature concerning PROMs has increased exponentially in the past 2 decades, producing a vast array of data upon which the multidisciplinary team can reflect. For this review, “Handle On QOL” has been used as a source of references to illustrate the points raised. PROMs are contextualized by considering the clinically-distinct key stages that cancer patients endure: diagnosis, treatment, acute toxicity, early recovery, late effects, recurrence, and palliation. The PROMs are considered in six main categories: 1) those addressing cornucopia of issues not specific to cancer; 2) those addressing issues common to all cancers; 3) questionnaires with items specific to HNC; 4) questionnaires that focus on a particular aspect of head and neck function; 5) those measuring psychological concerns, such as depression, anxiety, or self-esteem; and 6) item prompt lists. Potential benefits of PROMs in clinical practice are discussed, as are barriers to use. The way forward in integrating PROMs into routine HNC care is discussed with an emphasis on information technology.
Original languageEnglish
Pages (from-to)133-142
JournalPatient Related Outcome Measures
Volume8
Early online date8 Nov 2017
DOIs
Publication statusE-pub ahead of print - 8 Nov 2017

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Head and Neck Neoplasms
Neoplasms
Self Concept
Caregivers
Patient Reported Outcome Measures
Patient Care
Neck
Anxiety
Head
Depression
Psychology
Technology
Recurrence
Therapeutics

Keywords

  • patient reported outcomes
  • head and neck cancer
  • quality of life
  • multi-professional

Cite this

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Using PROMs to guide patients and practitioners through the head and neck cancer journey. / Rogers, Simon; Barber, Brittany.

In: Patient Related Outcome Measures, Vol. 8, 08.11.2017, p. 133-142.

Research output: Contribution to journalArticle

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