Patient Concerns Inventory for head and neck cancer: Brazilian cultural adaptation

Ivy Jungerman, Julia Toyota, Neyller Patriota Montoni, Elma Heitmann Mares Azevedo, Renata Ligia Vieira Guedes, Aline Damascena, Derek Lowe, Jose Guilherme Vartanian, Simon Rogers, Luiz Paulo Kowalski

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    Abstract

    Objective: The purpose of this study was to translate, culturally validate and evaluate the Patients Concerns Inventory - Head and Neck (PCI- H&N) in a consecutive series of Brazilian patients. Methods: This study included adult patients treated for upper aerodigestive tract (UADT) cancer. The translation and cultural adaptation of the PCI–H&N followed internationally accepted guidelines and included a pretest sample of patients that completed the first Brazilian-Portuguese version of the PCI. The use/feasibility/acceptability of the PCI was tested subsequently in a consecutive series of UADT cancer patients that completed the final Brazilian-Portuguese version of the PCI and a Brazilian-Portuguese version of the University of Washington Quality of Life Questionnaire (UW-QOL). Associations between physical and socio emotional composite scores from the UW-QOL and PCI were analyzed. Results: Twenty patients participated in the pretest survey (translation and cultural adaptation process), and 84 patients were analysed in the cultural validation study. Issues most selected were: fear of cancer returning, dry mouth, chewing/eating, speech/voice/being understood, swallowing, dental health/teeth, anxiety, fatigue/tiredness, taste and fear of adverse events. The three specialists most selected were speech therapist, dentist and psychologist. Statistically significant relationships between PCI and UW-QOL were found. Conclusions: The translation and cultural adaptation of the PCI for Brazilian-Portuguese language was successful, and the results demonstrate its feasibility and usefulness, making this a valuable tool for use within the Brazilian H&N cancer population.
    Original languageEnglish
    Pages (from-to)311-319
    JournalRevista da Associação Médica Brasileira
    Volume63
    Issue number4
    DOIs
    Publication statusAccepted/In press - 12 Jan 2016

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    Keywords

    • Surveys and Questionnaires
    • Quality of life
    • Head and neck neoplasms
    • validity and reliability
    • outcomes research

    Cite this

    Jungerman, I., Toyota, J., Montoni, N. P., Mares Azevedo, E. H., Guedes, R. L. V., Damascena, A., Lowe, D., Vartanian, J. G., Rogers, S., & Kowalski, L. P. (Accepted/In press). Patient Concerns Inventory for head and neck cancer: Brazilian cultural adaptation. Revista da Associação Médica Brasileira, 63(4), 311-319. https://doi.org/10.1590/1806-9282.63.04.311