“It’s not who I am”: children’s experiences of growing up with a long-term condition in England, Australia and New Zealand.

Bernie Carter, Karen Ford, Lucy Bray, Tineke Water, Janine Arnott, Cassandra Tichanow, Annette Dickinson

Research output: Contribution to journalArticle

5 Downloads (Pure)

Abstract

Purpose: This study aimed to explore children’s perceptions and understandings of how their lives are shaped (or not) by a long-term condition and its associated management. Design and Methods: A qualitative, participatory methodology using auto driven photo-elicitation interviews with 45 purposively recruited children aged 6-12 years from England, New Zealand and Australia was utilised. Results: Interpretative thematic analysis resulted in an over-arching theme, ‘It’s not who I am…’ but it’s part of me, and three sub-themes: getting on with my life; the special value of family, friendship, support and comfort; and things that get in the way of getting on. Practice Implications: Pediatric nurses should be aware that across all ages and across the three countries the boys and girls actively projected their self-concept as ‘well’ children and were active agents in presenting themselves as ‘normal’ children. However, their identity as a ‘normal child’ was bound to their identity as a child with a long-term condition.
Original languageEnglish
Pages (from-to)1-10
JournalJournal for Specialists in Pediatric Nursing
Volume22
Issue number4
Early online date26 Sep 2017
DOIs
Publication statusE-pub ahead of print - 26 Sep 2017

Fingerprint

New Zealand
experience
self-concept
friendship
nurse
methodology
interview
management
Values

Keywords

  • Long-term condition
  • chronic illness
  • children’s perceptions
  • identity
  • self-concept
  • agency
  • normal
  • well

Cite this

@article{76b730a93852432c93858240d6baceb4,
title = "“It’s not who I am”: children’s experiences of growing up with a long-term condition in England, Australia and New Zealand.",
abstract = "Purpose: This study aimed to explore children’s perceptions and understandings of how their lives are shaped (or not) by a long-term condition and its associated management. Design and Methods: A qualitative, participatory methodology using auto driven photo-elicitation interviews with 45 purposively recruited children aged 6-12 years from England, New Zealand and Australia was utilised. Results: Interpretative thematic analysis resulted in an over-arching theme, ‘It’s not who I am…’ but it’s part of me, and three sub-themes: getting on with my life; the special value of family, friendship, support and comfort; and things that get in the way of getting on. Practice Implications: Pediatric nurses should be aware that across all ages and across the three countries the boys and girls actively projected their self-concept as ‘well’ children and were active agents in presenting themselves as ‘normal’ children. However, their identity as a ‘normal child’ was bound to their identity as a child with a long-term condition.",
keywords = "Long-term condition, chronic illness, children’s perceptions, identity, self-concept, agency, normal, well",
author = "Bernie Carter and Karen Ford and Lucy Bray and Tineke Water and Janine Arnott and Cassandra Tichanow and Annette Dickinson",
note = "e12197",
year = "2017",
month = "9",
day = "26",
doi = "10.1111/jspn.12197",
language = "English",
volume = "22",
pages = "1--10",
journal = "Journal for Specialists in Pediatric Nursing",
issn = "1744-6155",
number = "4",

}

“It’s not who I am”: children’s experiences of growing up with a long-term condition in England, Australia and New Zealand. / Carter, Bernie; Ford, Karen; Bray, Lucy; Water, Tineke; Arnott, Janine; Tichanow, Cassandra; Dickinson, Annette.

In: Journal for Specialists in Pediatric Nursing, Vol. 22, No. 4, 26.09.2017, p. 1-10.

Research output: Contribution to journalArticle

TY - JOUR

T1 - “It’s not who I am”: children’s experiences of growing up with a long-term condition in England, Australia and New Zealand.

AU - Carter, Bernie

AU - Ford, Karen

AU - Bray, Lucy

AU - Water, Tineke

AU - Arnott, Janine

AU - Tichanow, Cassandra

AU - Dickinson, Annette

N1 - e12197

PY - 2017/9/26

Y1 - 2017/9/26

N2 - Purpose: This study aimed to explore children’s perceptions and understandings of how their lives are shaped (or not) by a long-term condition and its associated management. Design and Methods: A qualitative, participatory methodology using auto driven photo-elicitation interviews with 45 purposively recruited children aged 6-12 years from England, New Zealand and Australia was utilised. Results: Interpretative thematic analysis resulted in an over-arching theme, ‘It’s not who I am…’ but it’s part of me, and three sub-themes: getting on with my life; the special value of family, friendship, support and comfort; and things that get in the way of getting on. Practice Implications: Pediatric nurses should be aware that across all ages and across the three countries the boys and girls actively projected their self-concept as ‘well’ children and were active agents in presenting themselves as ‘normal’ children. However, their identity as a ‘normal child’ was bound to their identity as a child with a long-term condition.

AB - Purpose: This study aimed to explore children’s perceptions and understandings of how their lives are shaped (or not) by a long-term condition and its associated management. Design and Methods: A qualitative, participatory methodology using auto driven photo-elicitation interviews with 45 purposively recruited children aged 6-12 years from England, New Zealand and Australia was utilised. Results: Interpretative thematic analysis resulted in an over-arching theme, ‘It’s not who I am…’ but it’s part of me, and three sub-themes: getting on with my life; the special value of family, friendship, support and comfort; and things that get in the way of getting on. Practice Implications: Pediatric nurses should be aware that across all ages and across the three countries the boys and girls actively projected their self-concept as ‘well’ children and were active agents in presenting themselves as ‘normal’ children. However, their identity as a ‘normal child’ was bound to their identity as a child with a long-term condition.

KW - Long-term condition

KW - chronic illness

KW - children’s perceptions

KW - identity

KW - self-concept

KW - agency

KW - normal

KW - well

U2 - 10.1111/jspn.12197

DO - 10.1111/jspn.12197

M3 - Article

VL - 22

SP - 1

EP - 10

JO - Journal for Specialists in Pediatric Nursing

JF - Journal for Specialists in Pediatric Nursing

SN - 1744-6155

IS - 4

ER -