Purpose: This study aimed to explore children’s perceptions and understandings of how their lives are shaped (or not) by a long-term condition and its associated management. Design and Methods: A qualitative, participatory methodology using auto driven photo-elicitation interviews with 45 purposively recruited children aged 6-12 years from England, New Zealand and Australia was utilised. Results: Interpretative thematic analysis resulted in an over-arching theme, ‘It’s not who I am…’ but it’s part of me, and three sub-themes: getting on with my life; the special value of family, friendship, support and comfort; and things that get in the way of getting on. Practice Implications: Pediatric nurses should be aware that across all ages and across the three countries the boys and girls actively projected their self-concept as ‘well’ children and were active agents in presenting themselves as ‘normal’ children. However, their identity as a ‘normal child’ was bound to their identity as a child with a long-term condition.
- Long-term condition
- chronic illness
- children’s perceptions
Carter, B., Ford, K., Bray, L., Water, T., Arnott, J., Tichanow, C., & Dickinson, A. (2017). “It’s not who I am”: children’s experiences of growing up with a long-term condition in England, Australia and New Zealand. Journal for Specialists in Pediatric Nursing, 22(4), 1-10. https://doi.org/10.1111/jspn.12197