'It doesn't feel like our house anymore': The impact of medical technology upon life at home for families with a medically complex, technology-dependent child

Tracy Mitchell*, LUCY BRAY, Lucy Blake, Annette Dickinson, BERNIE CARTER

*Corresponding author for this work

Research output: Contribution to journalArticle (journal)peer-review

1 Citation (Scopus)
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Abstract

The study aimed to identify how medical technology impacts upon the home and life at home. Inductive auto-driven photo-elicitation or semi-structured interviews were conducted with technology-dependent children/young people (n=2) and their family members (n=15) from 10 families. Thematic analysis generated three themes: Altered physicality and look of the home; Altered sounds in the home; and ‘It’s worth it! Technology enables us to stay as a family’. Fundamentally, the detrimental impacts of living with medical technology were perceived as worth it as these enabled their child to be at home. Home was not home, and families were incomplete without their child at home.
Original languageEnglish
Article number102768
JournalHealth and Place
Volume74
Early online date23 Feb 2022
DOIs
Publication statusPublished - 1 Mar 2022

Keywords

  • child
  • adolescent
  • young adult
  • biomedical technology
  • medical home
  • Photo-elicitation

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