'It doesn't feel like our house anymore': The impact of medical technology upon life at home for families with a medically complex, technology-dependent child

Tracy Mitchell; LUCY BRAY; Lucy Blake; Annette Dickinson; BERNIE CARTER

doi:10.1016/j.healthplace.2022.102768

'It doesn't feel like our house anymore': The impact of medical technology upon life at home for families with a medically complex, technology-dependent child

Tracy Mitchell^*, LUCY BRAY, Lucy Blake, Annette Dickinson, BERNIE CARTER

^*Corresponding author for this work

Nursing & Midwifery

Research output: Contribution to journal › Article (journal) › peer-review

4 Citations (Scopus)

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Abstract

The study aimed to identify how medical technology impacts upon the home and life at home. Inductive auto-driven photo-elicitation or semi-structured interviews were conducted with technology-dependent children/young people (n=2) and their family members (n=15) from 10 families. Thematic analysis generated three themes: Altered physicality and look of the home; Altered sounds in the home; and ‘It’s worth it! Technology enables us to stay as a family’. Fundamentally, the detrimental impacts of living with medical technology were perceived as worth it as these enabled their child to be at home. Home was not home, and families were incomplete without their child at home.

Original language	English
Article number	102768
Journal	Health and Place
Volume	74
Early online date	23 Feb 2022
DOIs	https://doi.org/10.1016/j.healthplace.2022.102768
Publication status	Published - 1 Mar 2022

Keywords

child
adolescent
young adult
biomedical technology
medical home
Photo-elicitation

Research Centres

International Centre for Applied Research with childrEn, young people, pregnant women and families

Access to Document

10.1016/j.healthplace.2022.102768

Tracy-paper-as submittedAccepted author manuscript, 1.42 MBLicence: CC BY-NC-ND
Mitchell-Carter 2022 Impact of med techmology on houseFinal published version, 1.7 MBLicence: CC BY

Cite this

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AU - Blake, Lucy

AU - Dickinson, Annette

AU - CARTER, BERNIE

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AB - The study aimed to identify how medical technology impacts upon the home and life at home. Inductive auto-driven photo-elicitation or semi-structured interviews were conducted with technology-dependent children/young people (n=2) and their family members (n=15) from 10 families. Thematic analysis generated three themes: Altered physicality and look of the home; Altered sounds in the home; and ‘It’s worth it! Technology enables us to stay as a family’. Fundamentally, the detrimental impacts of living with medical technology were perceived as worth it as these enabled their child to be at home. Home was not home, and families were incomplete without their child at home.

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'It doesn't feel like our house anymore': The impact of medical technology upon life at home for families with a medically complex, technology-dependent child

Abstract

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