Information Seeking Among People With Motor Neurone Disease

M. O'Brien

    Research output: Contribution to conferencePaper


    This qualitative study employed indepth, semistructured audiotaped interviews with seven people with motor neurone disease (MND) to explore their desire for information about MND and their experiences in seeking and obtaining such information. Factors affecting their information-seeking behaviour were identified through a process of interpretative phenomenological analysis. Three distinct information-seeking categories emerged. Active seekers personally acquired information from a variety of sources. Selective seekers had access to information but often relied on 'buffers' to filter out unsuitable material. Information avoiders almost always used a 'buffer' to pre-screen any information to which they were exposed. All participants described negative effects on being exposed to unsolicited information, often in the form of media coverage. This work highlights the impact of unsolicited information on people with MND, an area not previously studied.
    Original languageEnglish
    Publication statusPublished - 2003
    Event14th International Symposium on ALS/MND - Milan, Italy
    Duration: 17 Nov 200319 Nov 2003


    Conference14th International Symposium on ALS/MND


    Dive into the research topics of 'Information Seeking Among People With Motor Neurone Disease'. Together they form a unique fingerprint.

    Cite this