Inequalities in access to health and social care among adults with multiple sclerosis: a scoping review of the literature

Hazel Roddam, David Rog, Jessie Janssen, Neil Wilson, Lucy Cross, Olufemi Olajide, Paola Dey

Research output: Contribution to journalArticle

Abstract

Variations in access to health care are known to contribute to differences in life expectancy, morbidity and health-related quality-of-life across population subgroups. We undertook a scoping review to identify what is known about in-country variations in access to services for adults with multiple sclerosis and to identify gaps in the literature to inform future research and national policies. We searched MEDLINE, CINAHL, EMBASE, PSYCHINFO, SocINDEX and Social Science Abstracts from inception to end of December 2016 for quantitative studies which had investigated differences in access to prevention services, healthcare services, treatments and social care between inequality groups, defined using the PROGRESS-PLUS framework. A total of 4959 unique abstracts yielded 36 papers which met our eligibility criteria. Only 3 studies were cohort studies and only 4 were population based; most were from the United States (n=27). There were 6 studies on access to MS focused care and 6 on access to Disease Modifying drugs. There were 3 studies on access to prevention/lifestyle programmes and none on access to welfare services or information support. There were no papers examining inequalities in access for ‘vulnerable’ groups, such as, those with learning disability. In the available studies, there was evidence of inequalities in access to services with a trend for worse access among men, older age groups, those from lower socioeconomic groups or the least educated, non-caucasians, those with mental health problems and those from rural areas. In the studies on access to disease modifying treatments, older age and lower socioeconomic status were consistently associated with a lower rate of uptake, while race and gender were not. Inequalities or disparities in access to all levels of services and treatments will need to be addressed through a strategic research agenda with an emphasis on population based studies and development and evaluation of interventions to reduce inequality.
Original languageEnglish
Pages (from-to)290-304
JournalMultiple Sclerosis and Related Disorders
Volume28
Early online date3 Jan 2019
DOIs
Publication statusE-pub ahead of print - 3 Jan 2019

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Health Services Accessibility
Multiple Sclerosis
Population
Information Services
Social Sciences
Learning Disorders
Life Expectancy
Social Work
Social Class
MEDLINE
Life Style
Mental Health
Cohort Studies
Therapeutics
Age Groups
Quality of Life
Morbidity
Delivery of Health Care
Research
Pharmaceutical Preparations

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Roddam, Hazel ; Rog, David ; Janssen, Jessie ; Wilson, Neil ; Cross, Lucy ; Olajide, Olufemi ; Dey, Paola. / Inequalities in access to health and social care among adults with multiple sclerosis: a scoping review of the literature. In: Multiple Sclerosis and Related Disorders. 2019 ; Vol. 28. pp. 290-304.
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Inequalities in access to health and social care among adults with multiple sclerosis: a scoping review of the literature. / Roddam, Hazel; Rog, David; Janssen, Jessie; Wilson, Neil; Cross, Lucy; Olajide, Olufemi; Dey, Paola.

In: Multiple Sclerosis and Related Disorders, Vol. 28, 03.01.2019, p. 290-304.

Research output: Contribution to journalArticle

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