@article{fc3e4797ad824bd1bd2478eb690b9496,
title = "Holding their own and being resilient: narratives of parents over the first 12 months of their child having tracheostomy.: Holding their own and being resilient",
abstract = "Caring for a child with a tracheostomy can be challenging for parentsand learning to safely manage their child{\textquoteright}s airway can be frighteningdue to their child{\textquoteright}s breathing issues, complex diagnosis and the difficultdecisions they have to make. The aim of this longitudinal narrativestudy was to tell the stories of parents whose child had a new tracheostomy.Twenty three narrative interviews were conducted withtwelve parents from nine families at three time points over a 12 monthperiod. Data were analyzed using a socio-narratological approach. Thestories told how parents were able to {\textquoteleft}hold their own{\textquoteright} despite experiencingshock, emotional upheaval and uncertainty during the periodof their child{\textquoteright}s surgery. {\textquoteleft}Holding their own{\textquoteright} was possible for parentsbecause resilience played an important part of their journey. Parentscontinued to be resilient as they adapted to being at home and dealtwith ongoing challenging and stressful circumstances. All of the parentstold stories reflecting on and recognizing that there were timeswhen they exhibited higher levels of resilience and times when theirresilience was lower. Looking back on their experiences parents appreciatedthat they reframed their initial often negative views about theirchild{\textquoteright}s need for a tracheostomy into more positive understandings anda future orientated perspective.",
keywords = "Parents, Tracheostomy, Narrative, Resilience, Reframe",
author = "Alison Flynn and Karen Whittaker and Adam Donne and LUCY BRAY and BERNIE CARTER",
year = "2020",
month = jul,
day = "1",
doi = "10.1080/24694193.2020.1785046",
language = "English",
journal = "Comprehensive Child and Adolescent Nursing",
issn = "2649-4193",
publisher = "Taylor & Francis",
}