Healthcare professionals’ priorities for training to identify and manage distress experienced by young people with a stoma due to inflammatory bowel disease: a consensus study using online nominal group technique

Benjamin Saunders*, Kay Polidano, Carolyn A Chew-Graham, Tamsin Fisher, Nadia Corp, Megan McDermott-Hughes, Adam D Farmer, Lucy Bray

*Corresponding author for this work

Research output: Contribution to journalArticle (journal)peer-review

1 Citation (Scopus)
31 Downloads (Pure)

Abstract

Objectives: Young people with a stoma due to inflammatory bowel disease (IBD) commonly experience distress, however this is not always well managed in clinical settings. More effective support may/is likely to reduce the possibility of individuals experiencing sustained distress, which may engender depression or anxiety. This study aimed to gain consensus among a multidisciplinary group of healthcare professionals (HCPs) on priorities for training in the identification and management of distress in this population. One of the authors is a young person with a stoma.
Design: Participants were recruited through Twitter and the researchers’ clinical/research contacts. Two consensus group meetings were conducted using Nominal Group Technique, involving participants generating, discussing and rating on a Likert scale, topics for inclusion in an HCP training package.
Setting: Online video conferencing. Participants were located across England, with one based in USA.
Participants: Nineteen HCPs participated: three GPs, three stoma nurses, two IBD nurses, nine clinical psychologists, two gastroenterologists.
Results: Twenty-five topics were generated by participants; 19 reached consensus of >80%, that is, a mean of >5.6 on a 7-point Likert scale. These included: recognising and validating different levels of, and variation in, distress; tackling stigma and normalising having a stoma; everyday practicalities of stoma management, including food and sleep; opening and holding conversations about stoma-related distress; considering the impact of different cultural beliefs on adaptation after stoma surgery; training in simple techniques for gauging the patient’s distress during clinical encounters; having conversations about body image; and myth-busting common fears, such as odour.
Conclusions: This study is the first to identify HCP training priorities for managing stoma-related distress in young people. Consensus was reached for 19 topics, reflecting the varied needs of young people with a stoma. Findings will inform development of a training package for HCPs treating young people with IBD and a stoma.
Original languageEnglish
Article numbere072360
JournalBMJ Open
Volume13
Issue number11
DOIs
Publication statusPublished - 29 Nov 2023

Keywords

  • mental health
  • gastroenterology
  • inflammatory bowel disease
  • Humans
  • Inflammatory Bowel Diseases
  • Communication
  • Adolescent
  • Health Personnel
  • Delivery of Health Care
  • Surgical Stomas
  • Health Personnel/education
  • Inflammatory Bowel Diseases/surgery

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