Abstract
Healthcare professionals have a professional duty to provide patients
with accurate information in order to assist in managing their illness.
This may be more difficult with an uncommon illness, such as motor
neurone disease (MND), as many healthcare professionals may feel
poorly informed about the illness themselves. This study set out
to survey the level of knowledge and understanding about MND among
a group of 100 healthcare professionals who had personal experience
of managing the care of a person with MND. The value of the MND
nurse specialist and the Motor Neurone Disease Association as sources
of information were highlighted. There was evidence of active
information seeking about MND among all professional groups.
However, while many respondents felt that their knowledge of the
disease processes in MND and their own profession’s role in the
management of the condition was good, 57% of respondents felt that
their current level of overall knowledge about MND was inadequate
Original language | English |
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Pages (from-to) | 1080-1084 |
Journal | British Journal of Nursing |
Volume | 13 |
Issue number | 18 |
Publication status | Published - 2004 |