‘Haematological cancers, they’re a funny bunch’: A qualitative study of non-Hodgkin’s lymphoma patient experiences of unmet supportive care needs

Brooke Swash*, Nick Hulbert-Williams, Ros Bramwell

*Corresponding author for this work

Research output: Contribution to journalArticle (journal)peer-review

14 Citations (Scopus)

Abstract

Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six non-Hodgkin’s lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included the following: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family and lack of access to relevant support services are notable unmet needs that differ from previous findings.

Original languageEnglish
Pages (from-to)1464-1475
Number of pages12
JournalJournal of Health Psychology
Volume23
Issue number11
DOIs
Publication statusPublished - 1 Sep 2018

Keywords

  • cancer
  • clinical health psychology
  • healthcare
  • psychological distress
  • qualitative methods

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