Fit for purpose: modernising the minimum data set collection in the United Kingdom

C. Littlewood, B. Jack, A. Eve, D. Murphy, J. Ellershaw

    Research output: Contribution to conferencePosterpeer-review


    BACKGROUND The Minimum Data Set for Specialist Palliative Care services was developed in 1995 to provide annual data on services in the U.K. The development of payment by results and health resource groups,together with identified limitations of the current MDS including missing data, the potential for double counting and a 68% return rate, resulted in a current collaborative project to revise and update the MDS. METHOD Action research was utilised for the study as a group activity that focuses on partnership between researchers and participants involved in the change process. Purposive sampling was used to invite key stakeholders including multidisciplinary specialist palliative care services involved in completing the MDS from across England and Wales.38 respondents attended 3 workshops, where each section of the MDS were discussed and revised. Revised sections were returned to participants for review. RESULTS A consensus existed that the MDS did not completely reflect current patient workload, extent of services provided or development of integrated services.Additionally, with the development of regional Cancer Network Groups, some data was more appropriately collected regionally. CONCLUSION An action research approach enabled a national consultation process to be completed effectively.Involving a wide sample of stakeholders ensured revisions were made based upon a national consensus of opinion and met the changing provision of Specialist services. Further information regarding the 128 10th Congress of the European Association for Palliative Care, Budapest, Hungary, 7–9 June 2007 Poster abstracts Poster abstractsaction research process,the changes made to the MDS and the second stage of the action research cycle piloting the revised MDS will be presented
    Original languageEnglish
    Publication statusPublished - 2007
    Event10th Congress for the European Association for Palliative Care - Budapest, Hungary
    Duration: 6 Jun 20079 Jun 2007


    Conference10th Congress for the European Association for Palliative Care


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