Telehealth as a community-monitoring project within children's urology care is an innovative development. There is limited evidence of the inclusion of staff and parents in the early stage development and later adoption of telehealth initiatives within routine urological nursing care or families' management of their child's bladder. The aim was to explore the experiences of key stakeholders (parents, clinicians, technical experts) of the proof of concept telehealth intervention in terms of remote community based urinalysis monitoring by parents of their child's urine. A concurrent mixed-methods research design using soft-systems methodology tools to inform data collection and analysis following interviews, observation and e-surveys with stakeholders. The parents adopted aspects of the telehealth intervention (urinalysis) but were less engaged with the voiding diary and weighing. The parents gained confidence in decision making and identified that the intervention reduced delays in their child receiving appropriate treatment, decreased the time burden and improved engagement with general practitioners. Managing the additional workload was a challenge for the clinical team. Parental empowerment and self-efficacy were clear outcomes from the intervention. Parents exercised their confidence and control and were selective about which aspects of the intervention they perceived as having credibility and which they valued.
- Neurogenic bladder
- remote patient monitoring
- soft systems methodology
Carter, B., Whittaker, K., & Sanders, C. (2018). Evaluating a telehealth intervention for urinalysis monitoring in children with neurogenic bladder. Journal of Child Health Care, 1-18. https://doi.org/10.1177/1367493518777294