Abstract
Background: End of life decisions for people with advanced dementia are reported as often being difficult for families as they attempt to make appropriate and justified decisions.
Aim: To explore the experiences of advance care planning amongst family caregivers of people with advanced dementia.
Design: Qualitative research including a series of single cases (close family relatives).
Methods: A purposive sample of 12 family caregivers within a specialist dementia unit was interviewed about their experiences of advance care planning between August 2009 and February 2010.
Results/Findings: Family caregivers need encouragement to ask the right questions during advance care planning to discuss the appropriateness of nursing and medical interventions at the end of life.
| Original language | English |
|---|---|
| Pages (from-to) | 958-975 |
| Journal | Dementia |
| Volume | 15 |
| Issue number | 5 |
| Early online date | 3 Sept 2014 |
| DOIs | |
| Publication status | Published - 1 Sept 2016 |