End of life care: The experiences of advance care planning amongst family caregivers of people with advanced dementia - A qualitative study

SE Ashton, Brenda Roe, Barbara Jack, B McLelland

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    28 Citations (Scopus)
    41 Downloads (Pure)

    Abstract

    Background: End of life decisions for people with advanced dementia are reported as often being difficult for families as they attempt to make appropriate and justified decisions. Aim: To explore the experiences of advance care planning amongst family caregivers of people with advanced dementia. Design: Qualitative research including a series of single cases (close family relatives). Methods: A purposive sample of 12 family caregivers within a specialist dementia unit was interviewed about their experiences of advance care planning between August 2009 and February 2010. Results/Findings: Family caregivers need encouragement to ask the right questions during advance care planning to discuss the appropriateness of nursing and medical interventions at the end of life.
    Original languageEnglish
    Pages (from-to)958-975
    JournalDementia
    Volume15
    Issue number5
    Early online date3 Sep 2014
    DOIs
    Publication statusPublished - 1 Sep 2016

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