End of life care: The experiences of advance care planning amongst family caregivers of people with advanced dementia - A qualitative study

SE Ashton, Brenda Roe, Barbara Jack, B McLelland

Research output: Contribution to journalArticle

14 Citations (Scopus)
4 Downloads (Pure)

Abstract

Background: End of life decisions for people with advanced dementia are reported as often being difficult for families as they attempt to make appropriate and justified decisions. Aim: To explore the experiences of advance care planning amongst family caregivers of people with advanced dementia. Design: Qualitative research including a series of single cases (close family relatives). Methods: A purposive sample of 12 family caregivers within a specialist dementia unit was interviewed about their experiences of advance care planning between August 2009 and February 2010. Results/Findings: Family caregivers need encouragement to ask the right questions during advance care planning to discuss the appropriateness of nursing and medical interventions at the end of life.
Original languageEnglish
Pages (from-to)958-975
JournalDementia
Volume15
Issue number5
Early online date3 Sep 2014
DOIs
Publication statusPublished - 1 Sep 2016

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dementia
family planning
caregiver
experience
planning
qualitative research
nursing

Cite this

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End of life care: The experiences of advance care planning amongst family caregivers of people with advanced dementia - A qualitative study. / Ashton, SE; Roe, Brenda; Jack, Barbara; McLelland, B.

In: Dementia, Vol. 15, No. 5, 01.09.2016, p. 958-975.

Research output: Contribution to journalArticle

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AB - Background: End of life decisions for people with advanced dementia are reported as often being difficult for families as they attempt to make appropriate and justified decisions. Aim: To explore the experiences of advance care planning amongst family caregivers of people with advanced dementia. Design: Qualitative research including a series of single cases (close family relatives). Methods: A purposive sample of 12 family caregivers within a specialist dementia unit was interviewed about their experiences of advance care planning between August 2009 and February 2010. Results/Findings: Family caregivers need encouragement to ask the right questions during advance care planning to discuss the appropriateness of nursing and medical interventions at the end of life.

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