TY - JOUR
T1 - Effective public involvement
in the HoST-D Programme
for dementia home care
support: From proposal
and design to methods
of data collection
(innovative practice)
AU - Giebel, C
AU - Roe, Brenda
AU - Hodgson, A
AU - Britt, D
AU - Clarkson, P
PY - 2017/1/10
Y1 - 2017/1/10
N2 - Public involvement is an important
element in health and social care research.
However, it is little
evaluated in research. This paper
discusses the utility and impact of public
involvement of carers
and people with dementia in a five-year
programme on effective home support in
dementia, from
proposal and design to methods of data
collection, and provides a useful guide for
future research
on how to effectively involve the public.
The Home SupporT in Dementia (HoST-D)
Programmecomprises two elements of
public involvement, a small reference
group and a virtual lay advisory
group. Involving carers and people with
dementia is based on the six key values of
involvement –
respect, support, transparency,
responsiveness, fairness of opportunity,
and accountability. Carers
and people with dementia gave opinions on
study information, methods of data
collection, an
economic model, case vignettes, and a
memory aid booklet, which were all taken
into account.
Public involvement has provided benefits
to the programme whilst being considerate
of the time
constraints and geographical locations of
members.
AB - Public involvement is an important
element in health and social care research.
However, it is little
evaluated in research. This paper
discusses the utility and impact of public
involvement of carers
and people with dementia in a five-year
programme on effective home support in
dementia, from
proposal and design to methods of data
collection, and provides a useful guide for
future research
on how to effectively involve the public.
The Home SupporT in Dementia (HoST-D)
Programmecomprises two elements of
public involvement, a small reference
group and a virtual lay advisory
group. Involving carers and people with
dementia is based on the six key values of
involvement –
respect, support, transparency,
responsiveness, fairness of opportunity,
and accountability. Carers
and people with dementia gave opinions on
study information, methods of data
collection, an
economic model, case vignettes, and a
memory aid booklet, which were all taken
into account.
Public involvement has provided benefits
to the programme whilst being considerate
of the time
constraints and geographical locations of
members.
U2 - 10.1177/1471301216687698
DO - 10.1177/1471301216687698
M3 - Article (journal)
SN - 1741-2684
SP - 1
EP - 14
JO - Dementia
JF - Dementia
ER -