E-survey of current international physiotherapy practice for children with ataxia following surgical resection of posterior fossa tumour.

HELEN HARTLEY, BERNIE CARTER, Lisa Bunn, Barry Pizer, Steven Lane, Ram Kumar, Elizabeth Cassidy

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Abstract

Objective: To determine current international practice regarding physiotherapy input for children with ataxia following surgery for posterior fossa tumour.

Design: An e-survey covering the following domains: participant demographics, treatment/ intervention, virtual training, intensity/timing of treatment, and aims and outcomes of physiotherapy management.

Participants: Physiotherapists involved in the management of children with ataxia following surgical resection of posterior fossa tumour. Participants were contacted via 6 key groups; Paediatric Oncology Physiotherapy Network (POPs), Association of Paediatric Chartered Physiotherapists (APCP), European Paediatric Neurology Society (EPNS), International Society of Paediatric Oncology (SIOP)-Europe Brain Tumour Group, Posterior Fossa Society (PFS), and Pediatric Oncology Special Interest Group (SIG) (American Physical Therapy Association).

Results: A total of 96 physiotherapists participated: UK (n=53), rest of Europe (n=23), USA/ Canada (n=10), and Australia/NZ (n=10). The most common physiotherapy interventions used were balance exercises, gait re-education and proximal control activities. The most frequently used adjuncts to treatment were mobility aids and orthotics. Challenges reported regarding physiotherapy treatment were: reduced availability of physiotherapy input following discharge from the acute setting, lack of evidence, impact of adjuvant oncology treatment, and psychosocial impact.

Conclusion: This e-survey provides an initial sco- ping review of international physiotherapy practice in this area. It establishes a foundation for future research on improving rehabilitation of ataxia in this population.
Original languageEnglish
Article number1000020
Pages (from-to)1-9
Number of pages9
JournalJournal of Rehabilitation Medicine: Clinical Communications
Volume2
Early online date30 Dec 2019
Publication statusE-pub ahead of print - 30 Dec 2019

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  • Activities

    • 1 Research degree supervision

    PhD Supervision: Helen Hartley

    BERNIE CARTER (Director of Studies), Elizabeth Cassidy (Supervisor) & Ram Kumar (Supervisor)

    1 Apr 201731 Mar 2021

    Activity: Other activity typesResearch degree supervision

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