Abstract
Title
Caring for carers: Identifying the needs of family carers and improving support across Lancashire and South Cumbria with the Carers’ Alert Thermometer for Stroke (CAT-S)
Introduction
Approximately 1.3 million stroke survivors in the United Kingdom rely on family carers for daily support. The needs of stroke family carers are not routinely assessed by most clinical services. Early identification of their needs and support is crucial to maintain their well-being and carer role. An action research study with over 300 carers and professionals developed the CAT-S screening tool consisting of 11 questions with a traffic light scoring system, suggested next steps and space for an action plan to be developed collaboratively with the carer. This pilot is gathering longitudinal data over a 12-month period at 6-week, 12-week (Phase 1) and 6-month (Phase 2) reviews. It will assess the CAT-S usability, the level and change in carer need and resilience, and understand the impact for carers and staff from multiple teams and professional roles.
Methods
A mixed-method, two-phase, pilot involving carers and professionals from three integrated community stroke teams and the Stroke Association.
Results
In Phase 1, the CAT-S was acceptable to carers. It identified needs, with scores ranging from 0-19 of max 27, and led to action plans and tailored support being provided. Phase 2 will provide longitudinal data and incorporate staff views on the utility and feasibility of the CAT-S in clinical practice.
Conclusions
The needs of carers are often unmet until a crisis situation. The CAT-S is an evidence-based, short screening tool supporting person-centred care, signposting to support, and referral for more comprehensive assessment. Longitudinal findings will be presented with recommendations for future screening and support of carers.
Caring for carers: Identifying the needs of family carers and improving support across Lancashire and South Cumbria with the Carers’ Alert Thermometer for Stroke (CAT-S)
Introduction
Approximately 1.3 million stroke survivors in the United Kingdom rely on family carers for daily support. The needs of stroke family carers are not routinely assessed by most clinical services. Early identification of their needs and support is crucial to maintain their well-being and carer role. An action research study with over 300 carers and professionals developed the CAT-S screening tool consisting of 11 questions with a traffic light scoring system, suggested next steps and space for an action plan to be developed collaboratively with the carer. This pilot is gathering longitudinal data over a 12-month period at 6-week, 12-week (Phase 1) and 6-month (Phase 2) reviews. It will assess the CAT-S usability, the level and change in carer need and resilience, and understand the impact for carers and staff from multiple teams and professional roles.
Methods
A mixed-method, two-phase, pilot involving carers and professionals from three integrated community stroke teams and the Stroke Association.
Results
In Phase 1, the CAT-S was acceptable to carers. It identified needs, with scores ranging from 0-19 of max 27, and led to action plans and tailored support being provided. Phase 2 will provide longitudinal data and incorporate staff views on the utility and feasibility of the CAT-S in clinical practice.
Conclusions
The needs of carers are often unmet until a crisis situation. The CAT-S is an evidence-based, short screening tool supporting person-centred care, signposting to support, and referral for more comprehensive assessment. Longitudinal findings will be presented with recommendations for future screening and support of carers.
| Original language | English |
|---|---|
| Publication status | Published - 4 Dec 2023 |
| Event | UK Stroke Forum - ICC , Birmingham, United Kingdom Duration: 4 Dec 2023 → 6 Dec 2023 |
Conference
| Conference | UK Stroke Forum |
|---|---|
| Country/Territory | United Kingdom |
| City | Birmingham |
| Period | 4/12/23 → 6/12/23 |
Keywords
- Carers