Bridging the gap: the impact of a generic neurology nursing service on patients and carers

Background: Neurological conditions are estimated to affect 10 million people across the UK. The National Service Framework for long term neurological conditions identified a more coordinated service was required, including better care planning, prompt advice, support and information for patients and carers (DH 2005). Specialist disease specific nurse led services are widely established in neurology and are an effective way of providing enhanced care particularly for complex cases. However, there are many patients with long term neurological conditions patients do not receive this input, and it was identified that there are similar generic issues that affect most neurological conditions. To address this a generic neurology nursing service was piloted in one locality in the North West of England. The aim of this study was to evaluate the impact of the service, and this paper focuses upon the impact on patients and carers. Methodology: A stakeholder evaluation encompassing qualitative methodology was utilised for this element of the study. A non-probability sampling approach was implemented and 20 semi structured audio taped interviews were undertaken with patients and carers, who had experienced the service. Data was analysed using thematic analysis. Results and Discussion: Patients and carers all indicated a high degree of satisfaction with the service. The increased time for the consultation, continuity of care and ready access to the service were all widely reported. An increased knowledge of the disease including medication review and management were also indicated. This paper discusses the results and explores potential reasons for the findings. Recommendations for the development and expansion of this service are made.