Bereavement support and Prolonged Grief Disorder amongst family carers of people with Motor Neurone Disease: views of health and social care professionals from a descriptive survey.

Mary O'Brien, Andrew Kirkcaldy, Katherine Knighting, Brenda Roe, Barbara Jack

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Abstract

Family carers of people with motor neurone disease face many challenges pre and post-bereavement, with support needs not routinely assessed and little attention focused on recognising abnormal grief responses. Our survey (n=56) sought the views of those involved in the care of this population in England on bereavement support and Prolonged Grief Disorder. Results revealed over two-thirds of respondents felt unable to predict future cases of Prolonged Grief Disorder and that an alert tool to help identify carers of people with motor neurone disease at risk would be welcomed. Implications for future research and development of support are discussed.
Original languageEnglish
Pages (from-to)268-276
JournalBritish Journal of Neuroscience Nursing
Volume12
Issue number6
Early online date21 Dec 2016
DOIs
Publication statusE-pub ahead of print - 21 Dec 2016

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Bereavement
Motor Neuron Disease
Grief
Caregivers
Delivery of Health Care
England
Population
Surveys and Questionnaires

Cite this

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abstract = "Family carers of people with motor neurone disease face many challenges pre and post-bereavement, with support needs not routinely assessed and little attention focused on recognising abnormal grief responses. Our survey (n=56) sought the views of those involved in the care of this population in England on bereavement support and Prolonged Grief Disorder. Results revealed over two-thirds of respondents felt unable to predict future cases of Prolonged Grief Disorder and that an alert tool to help identify carers of people with motor neurone disease at risk would be welcomed. Implications for future research and development of support are discussed.",
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