Being ‘at-home’ on OPAT: A qualitative study of parents' experiences of paediatric Outpatient Parenteral Antimicrobial Therapy (OPAT): Being ‘at-home’ on OPAT

BERNIE CARTER, Debra Fisher-Smith, David Porter, Steven Lane, Matthew Peak, David Taylor-Robinson, Louise Bracken, Enitan Carrol

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Abstract

Objective To better understand factors that facilitate and hinder a positive experience of paediatric OPAT.

Design Qualitative study using semi-structured interviews. Setting A dedicated paediatric consultant-led hospital-based, outreach OPAT service in England.

Participants Participants were primarily parents of children who had received OPAT; one child participated. Methods Children and parents of children who received OPAT and who had participated in the survey phase of the larger study were invited to be interviewed.

Results Twelve parents (10 mothers, 2 fathers) of 10 children participated; one child (aged 15 years) Data analysis resulted in one meta-theme, ‘At-homeness’ with OPAT, this reflected the overall sense of home being a place in which the children and their parents could be where they wanted to be. Four key themes were identified that reflect the ways in which parents and children experienced being at-home on OPAT: ‘Comfort, security, freedom, and control’; ‘Faith, trust and confidence’; ‘Explanations and communication’; and ‘Concerns, restrictions and inconveniences’.

Conclusions Despite feeling anxious at times, parents reported that they and their children generally had a positive experience of OPAT; being at-home brought many benefits compared to in-patient care. Recommendations arising from the study include a 'whole-system' approach to discharge home that includes support related to return to school/nursery, reduction in disruptions to home-based routines, more clarity on choice and preparation for managing potential anxiety, better consideration of dose timing and enhanced preparation and information.

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Outpatients
Parents
Pediatrics
Therapeutics
Nursery Schools
Consultants
Fathers
England
Patient Care
Emotions
Anxiety
Communication
Mothers
Interviews

Keywords

  • Infectious diseases
  • Qualitative Research
  • information
  • Antimicrobial therapy
  • community

Cite this

CARTER, BERNIE ; Fisher-Smith, Debra ; Porter, David ; Lane, Steven ; Peak, Matthew ; Taylor-Robinson, David ; Bracken, Louise ; Carrol, Enitan. / Being ‘at-home’ on OPAT: A qualitative study of parents' experiences of paediatric Outpatient Parenteral Antimicrobial Therapy (OPAT) : Being ‘at-home’ on OPAT. In: Archives of Disease in Childhood. 2019.
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title = "Being ‘at-home’ on OPAT: A qualitative study of parents' experiences of paediatric Outpatient Parenteral Antimicrobial Therapy (OPAT): Being ‘at-home’ on OPAT",
abstract = "Objective To better understand factors that facilitate and hinder a positive experience of paediatric OPAT. Design Qualitative study using semi-structured interviews. Setting A dedicated paediatric consultant-led hospital-based, outreach OPAT service in England. Participants Participants were primarily parents of children who had received OPAT; one child participated. Methods Children and parents of children who received OPAT and who had participated in the survey phase of the larger study were invited to be interviewed. Results Twelve parents (10 mothers, 2 fathers) of 10 children participated; one child (aged 15 years) Data analysis resulted in one meta-theme, ‘At-homeness’ with OPAT, this reflected the overall sense of home being a place in which the children and their parents could be where they wanted to be. Four key themes were identified that reflect the ways in which parents and children experienced being at-home on OPAT: ‘Comfort, security, freedom, and control’; ‘Faith, trust and confidence’; ‘Explanations and communication’; and ‘Concerns, restrictions and inconveniences’. Conclusions Despite feeling anxious at times, parents reported that they and their children generally had a positive experience of OPAT; being at-home brought many benefits compared to in-patient care. Recommendations arising from the study include a 'whole-system' approach to discharge home that includes support related to return to school/nursery, reduction in disruptions to home-based routines, more clarity on choice and preparation for managing potential anxiety, better consideration of dose timing and enhanced preparation and information.",
keywords = "Infectious diseases, Qualitative Research, information, Antimicrobial therapy, community",
author = "BERNIE CARTER and Debra Fisher-Smith and David Porter and Steven Lane and Matthew Peak and David Taylor-Robinson and Louise Bracken and Enitan Carrol",
year = "2019",
month = "9",
day = "27",
doi = "https://adc.bmj.com/content/early/2019/09/25/archdischild-2019-317629.full",
language = "English",
journal = "Archives of Disease in Childhood",
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Being ‘at-home’ on OPAT: A qualitative study of parents' experiences of paediatric Outpatient Parenteral Antimicrobial Therapy (OPAT) : Being ‘at-home’ on OPAT. / CARTER, BERNIE; Fisher-Smith, Debra; Porter, David; Lane, Steven; Peak, Matthew ; Taylor-Robinson, David; Bracken, Louise; Carrol, Enitan.

In: Archives of Disease in Childhood, 27.09.2019.

Research output: Contribution to journalArticle

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T1 - Being ‘at-home’ on OPAT: A qualitative study of parents' experiences of paediatric Outpatient Parenteral Antimicrobial Therapy (OPAT)

T2 - Being ‘at-home’ on OPAT

AU - CARTER, BERNIE

AU - Fisher-Smith, Debra

AU - Porter, David

AU - Lane, Steven

AU - Peak, Matthew

AU - Taylor-Robinson, David

AU - Bracken, Louise

AU - Carrol, Enitan

PY - 2019/9/27

Y1 - 2019/9/27

N2 - Objective To better understand factors that facilitate and hinder a positive experience of paediatric OPAT. Design Qualitative study using semi-structured interviews. Setting A dedicated paediatric consultant-led hospital-based, outreach OPAT service in England. Participants Participants were primarily parents of children who had received OPAT; one child participated. Methods Children and parents of children who received OPAT and who had participated in the survey phase of the larger study were invited to be interviewed. Results Twelve parents (10 mothers, 2 fathers) of 10 children participated; one child (aged 15 years) Data analysis resulted in one meta-theme, ‘At-homeness’ with OPAT, this reflected the overall sense of home being a place in which the children and their parents could be where they wanted to be. Four key themes were identified that reflect the ways in which parents and children experienced being at-home on OPAT: ‘Comfort, security, freedom, and control’; ‘Faith, trust and confidence’; ‘Explanations and communication’; and ‘Concerns, restrictions and inconveniences’. Conclusions Despite feeling anxious at times, parents reported that they and their children generally had a positive experience of OPAT; being at-home brought many benefits compared to in-patient care. Recommendations arising from the study include a 'whole-system' approach to discharge home that includes support related to return to school/nursery, reduction in disruptions to home-based routines, more clarity on choice and preparation for managing potential anxiety, better consideration of dose timing and enhanced preparation and information.

AB - Objective To better understand factors that facilitate and hinder a positive experience of paediatric OPAT. Design Qualitative study using semi-structured interviews. Setting A dedicated paediatric consultant-led hospital-based, outreach OPAT service in England. Participants Participants were primarily parents of children who had received OPAT; one child participated. Methods Children and parents of children who received OPAT and who had participated in the survey phase of the larger study were invited to be interviewed. Results Twelve parents (10 mothers, 2 fathers) of 10 children participated; one child (aged 15 years) Data analysis resulted in one meta-theme, ‘At-homeness’ with OPAT, this reflected the overall sense of home being a place in which the children and their parents could be where they wanted to be. Four key themes were identified that reflect the ways in which parents and children experienced being at-home on OPAT: ‘Comfort, security, freedom, and control’; ‘Faith, trust and confidence’; ‘Explanations and communication’; and ‘Concerns, restrictions and inconveniences’. Conclusions Despite feeling anxious at times, parents reported that they and their children generally had a positive experience of OPAT; being at-home brought many benefits compared to in-patient care. Recommendations arising from the study include a 'whole-system' approach to discharge home that includes support related to return to school/nursery, reduction in disruptions to home-based routines, more clarity on choice and preparation for managing potential anxiety, better consideration of dose timing and enhanced preparation and information.

KW - Infectious diseases

KW - Qualitative Research

KW - information

KW - Antimicrobial therapy

KW - community

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M3 - Article

JO - Archives of Disease in Childhood

JF - Archives of Disease in Childhood

SN - 0003-9888

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