Abstract
Across more than 20 years I have undertaken research and scholarly
work focusing on children’s pain (Carter 1994, 2020), with a particular focus on the assessment of pain in children with profound cognitive impairment (PCI) (Carter et al, 2002, 2016, 2017). However, research is not just about writing
bids and doing the research; increasingly, it is about translating findings into action.
This article focuses on how I have tried to make change happen based on the evidence of my own and other people’s research. The specific trigger is a longitudinal qualitative study in which eight mothers of children with PCI shared stories of their experiences of learning, enduring, knowing and advocating
for their child’s pain. The research itself is modest – small scale and regional – yet it is one of very few studies to address the issue. In a separate article, the perspectives of clinicians, collected during the same study, are reported (Carter et al 2016). Long after the study was finished, I knew it was not finished with me. This article reflects on how I have continued to walk with the stories from
this study. This article has its roots in my earliest work but is most recently connected to an article published in 2017. The link to that article and its abstract are provided below.
work focusing on children’s pain (Carter 1994, 2020), with a particular focus on the assessment of pain in children with profound cognitive impairment (PCI) (Carter et al, 2002, 2016, 2017). However, research is not just about writing
bids and doing the research; increasingly, it is about translating findings into action.
This article focuses on how I have tried to make change happen based on the evidence of my own and other people’s research. The specific trigger is a longitudinal qualitative study in which eight mothers of children with PCI shared stories of their experiences of learning, enduring, knowing and advocating
for their child’s pain. The research itself is modest – small scale and regional – yet it is one of very few studies to address the issue. In a separate article, the perspectives of clinicians, collected during the same study, are reported (Carter et al 2016). Long after the study was finished, I knew it was not finished with me. This article reflects on how I have continued to walk with the stories from
this study. This article has its roots in my earliest work but is most recently connected to an article published in 2017. The link to that article and its abstract are provided below.
| Original language | English |
|---|---|
| Pages (from-to) | 48-51 |
| Number of pages | 4 |
| Journal | Nursing standard (Royal College of Nursing (Great Britain) : 1987) |
| Volume | Supplement |
| Publication status | Published - 30 Sept 2020 |
Keywords
- Nursing