A validated conceptual map of health transition research for young people with intellectual disabilities

Research output: Contribution to conferencePoster

Abstract

Aim: Evidence from research on health transition for young people with intellectual disabilities may poorly match the generic conceptual framework for continuity of care developed by Freeman et al. The study reviewed, appraised and mapped existing health transition research onto the conceptual continuity of care framework to identify the utilisation of existing conceptual frameworks in health transition research. Method: We conducted a scoping study of English language studies on health transitions and used a mapping technique to match research evidence onto the continuity of care framework. We then organised a series of discussion groups (n=3) with an expert panel, utilising nominal group technique, to validate the findings of the mapping exercise. Results: Existing health transition research is poorly matched onto the conceptual framework of continuity of care. This reflects a lack of conceptual and theoretical underpinning of existing health transition research and a poor utilisation of previously funded conceptual research. Conclusions: Health transition research should build on conceptual frameworks such as continuity of care and future research calls should encourage empirical research informed by existing conceptual frameworks.
Original languageEnglish
Pages791-791
Publication statusPublished - 14 Aug 2016
EventIASSIDD World Congress - Melbourne, Australia
Duration: 14 Aug 201619 Aug 2016

Conference

ConferenceIASSIDD World Congress
CountryAustralia
CityMelbourne
Period14/08/1619/08/16

Fingerprint

Health Transition
Disabled Persons
Intellectual Disability
Continuity of Patient Care
Research
Empirical Research
Language
Exercise

Cite this

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title = "A validated conceptual map of health transition research for young people with intellectual disabilities",
abstract = "Aim: Evidence from research on health transition for young people with intellectual disabilities may poorly match the generic conceptual framework for continuity of care developed by Freeman et al. The study reviewed, appraised and mapped existing health transition research onto the conceptual continuity of care framework to identify the utilisation of existing conceptual frameworks in health transition research. Method: We conducted a scoping study of English language studies on health transitions and used a mapping technique to match research evidence onto the continuity of care framework. We then organised a series of discussion groups (n=3) with an expert panel, utilising nominal group technique, to validate the findings of the mapping exercise. Results: Existing health transition research is poorly matched onto the conceptual framework of continuity of care. This reflects a lack of conceptual and theoretical underpinning of existing health transition research and a poor utilisation of previously funded conceptual research. Conclusions: Health transition research should build on conceptual frameworks such as continuity of care and future research calls should encourage empirical research informed by existing conceptual frameworks.",
author = "Axel Kaehne and James Ridley and Joann Kiernan",
year = "2016",
month = "8",
day = "14",
language = "English",
pages = "791--791",
note = "IASSIDD World Congress ; Conference date: 14-08-2016 Through 19-08-2016",

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A validated conceptual map of health transition research for young people with intellectual disabilities. / Kaehne, Axel; Ridley, James; Kiernan, Joann.

2016. 791-791 Poster session presented at IASSIDD World Congress, Melbourne, Australia.

Research output: Contribution to conferencePoster

TY - CONF

T1 - A validated conceptual map of health transition research for young people with intellectual disabilities

AU - Kaehne, Axel

AU - Ridley, James

AU - Kiernan, Joann

PY - 2016/8/14

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N2 - Aim: Evidence from research on health transition for young people with intellectual disabilities may poorly match the generic conceptual framework for continuity of care developed by Freeman et al. The study reviewed, appraised and mapped existing health transition research onto the conceptual continuity of care framework to identify the utilisation of existing conceptual frameworks in health transition research. Method: We conducted a scoping study of English language studies on health transitions and used a mapping technique to match research evidence onto the continuity of care framework. We then organised a series of discussion groups (n=3) with an expert panel, utilising nominal group technique, to validate the findings of the mapping exercise. Results: Existing health transition research is poorly matched onto the conceptual framework of continuity of care. This reflects a lack of conceptual and theoretical underpinning of existing health transition research and a poor utilisation of previously funded conceptual research. Conclusions: Health transition research should build on conceptual frameworks such as continuity of care and future research calls should encourage empirical research informed by existing conceptual frameworks.

AB - Aim: Evidence from research on health transition for young people with intellectual disabilities may poorly match the generic conceptual framework for continuity of care developed by Freeman et al. The study reviewed, appraised and mapped existing health transition research onto the conceptual continuity of care framework to identify the utilisation of existing conceptual frameworks in health transition research. Method: We conducted a scoping study of English language studies on health transitions and used a mapping technique to match research evidence onto the continuity of care framework. We then organised a series of discussion groups (n=3) with an expert panel, utilising nominal group technique, to validate the findings of the mapping exercise. Results: Existing health transition research is poorly matched onto the conceptual framework of continuity of care. This reflects a lack of conceptual and theoretical underpinning of existing health transition research and a poor utilisation of previously funded conceptual research. Conclusions: Health transition research should build on conceptual frameworks such as continuity of care and future research calls should encourage empirical research informed by existing conceptual frameworks.

M3 - Poster

SP - 791

EP - 791

ER -