The importance of patient reported outcomes following head and neck cancer (HNC) is evident by the increasing number of papers in this area. It is challenging to keep up to date and readily access relevant papers. HaNDLE-on-QoL is a website resource and a repository of abstracts that have used patient completed questionnaires to report on ‘quality of life’ (QOL) following head and neck cancer. The site has a search engine by paper title, first author, year of publication, words used in the abstract, site of cancer, study design, and questionnaires used. The aim of this paper is to summarise the content of HaNDLE-on-QoL. In May 2017, the website was searched by the criteria above. The site had 1498 papers. Publication numbers have increased over time from 1982 to present day, with 150 in 2015 and 185 in 2016. There is a range of sites but most are studies combine head and neck subsites (871), with 180 specifically oral and 109 focusing solely on larynx. There were 149 review articles. The commonest topics were swallowing (353), speech (299), pain (292), emotional (226), and depression (193). Most papers were on functional or predictors of HRQOL, however 98 were either clinical trials or RCT. The site has over 250 different questionnaires, commonest were EORTC-C30 (369), EORTC H&N35 (353), and UW-QOL (276). HaNDLE-on-QoL highlights the complexity of QOL following HNC and the diversity and range of studies. It serves as a useful reference point for those involved in clinical practice or research.
- Head and Neck Cancer
- Quality of life
- Patient Reported Outcomes
Wotherspoon, R. J., Kanatas, A. N., & Rogers, S. (2018). A review of the searchable web-based repository of papers published reporting quality of life in head and neck cancer by means of questionnaires: (HaNDLE-on-QoL). British Journal of Oral and Maxillofacial Surgery. https://doi.org/10.1016/j.bjoms.2017.12.008