A Network Approach to Neonatal Palliative Care Education: Impact on Knowledge, Efficacy, and Clinical Practice

Katherine Knighting, Jennifer Kirton, Sergio Silverio, N.J. Shaw

Research output: Contribution to journalArticle

Abstract

More than 80 000 babies are admitted to specialist neonatal units in the United Kingdom every year, with approximately 2109 neonatal deaths a year; 98% in hospital. A common element in guidance and pathways to facilitate the provision of palliative care to infants and their families is the importance of good education and training to develop high-quality staff and services. This article presents a mixed-methods, sequential, explanatory design evaluation of 1 day palliative care education workshops delivered using a network-wide approach to multidisciplinary professionals. Workshops were delivered by healthcare professionals and bereaved parents and evaluated using questionnaires, adapted for neonatal staff from standardized measures, and follow-up interviews. The workshop content and shared learning approach resulted in significant improvements in participant's knowledge, attitude, self-beliefs and confidence in neonatal palliative care, enhanced awareness of services, and improved links between professionals. Participants cascaded their learning to their teams and provided examples of changes in their clinical practice following the workshop. Parent stories were identified as a very powerful component of the training, with lasting impact on participants. Formal, integrated palliative care education programs for perinatal and neonatal staff and longitudinal research into the impact on practice and the experience received by families are needed.

Original languageEnglish
Pages (from-to)350-360
Number of pages11
JournalJournal of Perinatal and Neonatal Nursing
Volume33
Issue number4
Early online date1 Oct 2019
DOIs
Publication statusPublished - 1 Oct 2019

Fingerprint

Palliative Care
Education
Learning
Parents
Interviews
Delivery of Health Care
Research

Keywords

  • Neonatal
  • education
  • evaluation
  • palliative care
  • end of life care.

Cite this

@article{dea5135f7f81430a9dee8b8dc5828292,
title = "A Network Approach to Neonatal Palliative Care Education: Impact on Knowledge, Efficacy, and Clinical Practice",
abstract = "More than 80 000 babies are admitted to specialist neonatal units in the United Kingdom every year, with approximately 2109 neonatal deaths a year; 98{\%} in hospital. A common element in guidance and pathways to facilitate the provision of palliative care to infants and their families is the importance of good education and training to develop high-quality staff and services. This article presents a mixed-methods, sequential, explanatory design evaluation of 1 day palliative care education workshops delivered using a network-wide approach to multidisciplinary professionals. Workshops were delivered by healthcare professionals and bereaved parents and evaluated using questionnaires, adapted for neonatal staff from standardized measures, and follow-up interviews. The workshop content and shared learning approach resulted in significant improvements in participant's knowledge, attitude, self-beliefs and confidence in neonatal palliative care, enhanced awareness of services, and improved links between professionals. Participants cascaded their learning to their teams and provided examples of changes in their clinical practice following the workshop. Parent stories were identified as a very powerful component of the training, with lasting impact on participants. Formal, integrated palliative care education programs for perinatal and neonatal staff and longitudinal research into the impact on practice and the experience received by families are needed.",
keywords = "Neonatal, education, evaluation, palliative care, end of life care.",
author = "Katherine Knighting and Jennifer Kirton and Sergio Silverio and N.J. Shaw",
year = "2019",
month = "10",
day = "1",
doi = "10.1097/JPN.0000000000000437",
language = "English",
volume = "33",
pages = "350--360",
journal = "Journal of Perinatal and Neonatal Nursing",
issn = "0893-2190",
publisher = "Wolters Kluwer",
number = "4",

}

A Network Approach to Neonatal Palliative Care Education : Impact on Knowledge, Efficacy, and Clinical Practice. / Knighting, Katherine; Kirton, Jennifer; Silverio, Sergio; Shaw, N.J.

In: Journal of Perinatal and Neonatal Nursing, Vol. 33, No. 4, 01.10.2019, p. 350-360.

Research output: Contribution to journalArticle

TY - JOUR

T1 - A Network Approach to Neonatal Palliative Care Education

T2 - Impact on Knowledge, Efficacy, and Clinical Practice

AU - Knighting, Katherine

AU - Kirton, Jennifer

AU - Silverio, Sergio

AU - Shaw, N.J.

PY - 2019/10/1

Y1 - 2019/10/1

N2 - More than 80 000 babies are admitted to specialist neonatal units in the United Kingdom every year, with approximately 2109 neonatal deaths a year; 98% in hospital. A common element in guidance and pathways to facilitate the provision of palliative care to infants and their families is the importance of good education and training to develop high-quality staff and services. This article presents a mixed-methods, sequential, explanatory design evaluation of 1 day palliative care education workshops delivered using a network-wide approach to multidisciplinary professionals. Workshops were delivered by healthcare professionals and bereaved parents and evaluated using questionnaires, adapted for neonatal staff from standardized measures, and follow-up interviews. The workshop content and shared learning approach resulted in significant improvements in participant's knowledge, attitude, self-beliefs and confidence in neonatal palliative care, enhanced awareness of services, and improved links between professionals. Participants cascaded their learning to their teams and provided examples of changes in their clinical practice following the workshop. Parent stories were identified as a very powerful component of the training, with lasting impact on participants. Formal, integrated palliative care education programs for perinatal and neonatal staff and longitudinal research into the impact on practice and the experience received by families are needed.

AB - More than 80 000 babies are admitted to specialist neonatal units in the United Kingdom every year, with approximately 2109 neonatal deaths a year; 98% in hospital. A common element in guidance and pathways to facilitate the provision of palliative care to infants and their families is the importance of good education and training to develop high-quality staff and services. This article presents a mixed-methods, sequential, explanatory design evaluation of 1 day palliative care education workshops delivered using a network-wide approach to multidisciplinary professionals. Workshops were delivered by healthcare professionals and bereaved parents and evaluated using questionnaires, adapted for neonatal staff from standardized measures, and follow-up interviews. The workshop content and shared learning approach resulted in significant improvements in participant's knowledge, attitude, self-beliefs and confidence in neonatal palliative care, enhanced awareness of services, and improved links between professionals. Participants cascaded their learning to their teams and provided examples of changes in their clinical practice following the workshop. Parent stories were identified as a very powerful component of the training, with lasting impact on participants. Formal, integrated palliative care education programs for perinatal and neonatal staff and longitudinal research into the impact on practice and the experience received by families are needed.

KW - Neonatal

KW - education

KW - evaluation

KW - palliative care

KW - end of life care.

UR - http://www.scopus.com/inward/record.url?scp=85074091022&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85074091022&partnerID=8YFLogxK

UR - http://www.mendeley.com/research/network-approach-neonatal-palliative-care-education-impact-knowledge-efficacy-clinical-practice

U2 - 10.1097/JPN.0000000000000437

DO - 10.1097/JPN.0000000000000437

M3 - Article

C2 - 31651629

VL - 33

SP - 350

EP - 360

JO - Journal of Perinatal and Neonatal Nursing

JF - Journal of Perinatal and Neonatal Nursing

SN - 0893-2190

IS - 4

ER -