A NETWORK APPROACH TO NEONATAL PALLIATIVE CARE EDUCATION: IMPACT ON KNOWLEDGE, EFFICACY AND CLINICAL PRACTICE.

Katherine Knighting, Jennifer Kirton, Sergio Silverio, N.J. Shaw

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Over 80,000 babies are admitted to specialist neonatal units in the United Kingdom every year, with approximately 2,109 neonatal deaths a year; 98% in hospital. A common element in guidance and pathways to facilitate the provision of palliative care to infants and their families is the importance of good education and training to develop high quality staff and services. This paper presents a mixed-methods, sequential, explanatory design evaluation of one day palliative care education workshops delivered using a network-wide approach to multi-disciplinary professionals. Workshops were delivered by healthcare professionals and bereaved parents, and evaluated using questionnaires, adapted for neonatal staff from standardised measures, and follow-up interviews. The workshop content and shared learning approach resulted in significant improvements in participant’s knowledge, attitude, self-beliefs and confidence in neonatal palliative care, enhanced awareness of services, and improved links between professionals. Participants cascaded their learning to their teams and provided examples of changes in their clinical practice following the workshop. Parent stories were identified as a very powerful component of the training, with lasting impact on participants. Formal, integrated palliative care education programmes for perinatal and neonatal staff, and longitudinal research into the impact on practice and the experience received by families is needed.
Original languageEnglish
JournalJournal of Perinatal and Neonatal Nursing
Publication statusAccepted/In press - 20 Jan 2019

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Palliative Care
Education
Learning
Parents
Interviews
Delivery of Health Care
Research

Keywords

  • Neonatal
  • education
  • evaluation
  • palliative care
  • end of life care.

Cite this

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title = "A NETWORK APPROACH TO NEONATAL PALLIATIVE CARE EDUCATION: IMPACT ON KNOWLEDGE, EFFICACY AND CLINICAL PRACTICE.",
abstract = "Over 80,000 babies are admitted to specialist neonatal units in the United Kingdom every year, with approximately 2,109 neonatal deaths a year; 98{\%} in hospital. A common element in guidance and pathways to facilitate the provision of palliative care to infants and their families is the importance of good education and training to develop high quality staff and services. This paper presents a mixed-methods, sequential, explanatory design evaluation of one day palliative care education workshops delivered using a network-wide approach to multi-disciplinary professionals. Workshops were delivered by healthcare professionals and bereaved parents, and evaluated using questionnaires, adapted for neonatal staff from standardised measures, and follow-up interviews. The workshop content and shared learning approach resulted in significant improvements in participant’s knowledge, attitude, self-beliefs and confidence in neonatal palliative care, enhanced awareness of services, and improved links between professionals. Participants cascaded their learning to their teams and provided examples of changes in their clinical practice following the workshop. Parent stories were identified as a very powerful component of the training, with lasting impact on participants. Formal, integrated palliative care education programmes for perinatal and neonatal staff, and longitudinal research into the impact on practice and the experience received by families is needed.",
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year = "2019",
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A NETWORK APPROACH TO NEONATAL PALLIATIVE CARE EDUCATION: IMPACT ON KNOWLEDGE, EFFICACY AND CLINICAL PRACTICE. / Knighting, Katherine; Kirton, Jennifer; Silverio, Sergio; Shaw, N.J.

In: Journal of Perinatal and Neonatal Nursing, 20.01.2019.

Research output: Contribution to journalArticleResearchpeer-review

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N2 - Over 80,000 babies are admitted to specialist neonatal units in the United Kingdom every year, with approximately 2,109 neonatal deaths a year; 98% in hospital. A common element in guidance and pathways to facilitate the provision of palliative care to infants and their families is the importance of good education and training to develop high quality staff and services. This paper presents a mixed-methods, sequential, explanatory design evaluation of one day palliative care education workshops delivered using a network-wide approach to multi-disciplinary professionals. Workshops were delivered by healthcare professionals and bereaved parents, and evaluated using questionnaires, adapted for neonatal staff from standardised measures, and follow-up interviews. The workshop content and shared learning approach resulted in significant improvements in participant’s knowledge, attitude, self-beliefs and confidence in neonatal palliative care, enhanced awareness of services, and improved links between professionals. Participants cascaded their learning to their teams and provided examples of changes in their clinical practice following the workshop. Parent stories were identified as a very powerful component of the training, with lasting impact on participants. Formal, integrated palliative care education programmes for perinatal and neonatal staff, and longitudinal research into the impact on practice and the experience received by families is needed.

AB - Over 80,000 babies are admitted to specialist neonatal units in the United Kingdom every year, with approximately 2,109 neonatal deaths a year; 98% in hospital. A common element in guidance and pathways to facilitate the provision of palliative care to infants and their families is the importance of good education and training to develop high quality staff and services. This paper presents a mixed-methods, sequential, explanatory design evaluation of one day palliative care education workshops delivered using a network-wide approach to multi-disciplinary professionals. Workshops were delivered by healthcare professionals and bereaved parents, and evaluated using questionnaires, adapted for neonatal staff from standardised measures, and follow-up interviews. The workshop content and shared learning approach resulted in significant improvements in participant’s knowledge, attitude, self-beliefs and confidence in neonatal palliative care, enhanced awareness of services, and improved links between professionals. Participants cascaded their learning to their teams and provided examples of changes in their clinical practice following the workshop. Parent stories were identified as a very powerful component of the training, with lasting impact on participants. Formal, integrated palliative care education programmes for perinatal and neonatal staff, and longitudinal research into the impact on practice and the experience received by families is needed.

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