A different way of life: a qualitative study on the experiences of family caregivers of stroke survivors living at home

Background: There are approximately 1.3 million stroke survivors in the United Kingdom and the majority rely on family caregivers for support. However, these family caregivers’ needs are not routinely assessed by most services.
Aim: To explore the experiences of stroke family caregivers following implementation of the Care Act 2014.
Methods: 16 semi-structured, digitally recorded face-to-face qualitative interviews were conducted with a purposive sample of stroke family caregivers in North-West England. Thematic analysis was undertaken.
Findings: Two themes were identified: the effects of caregiving and unmet needs. Despite changes to legislation, family caregivers of stroke survivors continue to experience challenges such as financial problems, information needs, lack of respite and emotional support when providing care.
Conclusion: Existing approaches to identifying and supporting caregiver needs are insufficient. Proactive approaches are required to facilitate their needs to be identified and addressed on a regular basis.