A comparison of cancer patients’ and nurse specialists’ symptom assessment scores in a large acute UK NHS university hospital

Barbara A. Jack, M. Gambles, D. Murphy, P. Saltmarsh, J.E. Ellershaw

Research output: Contribution to conferencePoster

Abstract

Background: The delivery of effective symptom control at the end of life depends largely on appropriate assessment particularly that which prioritises information obtained directly from patients. However, direct patient assessment is not always possible, leaving clinicians to act as patient proxies in estimating levels of symptom severity to plan the delivery of appropriate care. The literature suggests some disparity exists between the assessments of health professionals and those of their patients. Aim: To establish the level of agreement between the ratings of patients and clinical nurse specialists (CNS) in a large acute UK NHS university hospital. Method: A quantitative case study design with a cross-over element is being employed. 60 patients referred to the palliative care team will be recruited. The initial 30 patients will receive a routine visit by a CNS who will complete the Palliative Care Assessment tool (PACA) using the information gained. These patients will then receive a visit (within 1 hour) from a researcher who will code their direct responses using the same tool. This procedure will be reversed for the remaining 30 patients to limit the potential for bias. The data will be analysed using Kappa to assess the level of agreement between scores. Discussion: This paper will consider the difficulties in establishing this type of research including ethical and practical challenges. Suggestions for ways to overcome these challenges will be discussed, along with the value of this type of research for palliative care.
Original languageEnglish
Publication statusPublished - 2004
Event3rd Research Forum of the European Association for Palliative Care - Stresa, Italy
Duration: 3 Jun 20046 Jun 2004

Conference

Conference3rd Research Forum of the European Association for Palliative Care
CountryItaly
CityStresa
Period3/06/046/06/04

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Symptom Assessment
Neoplasms
Palliative Care
Nurse Clinicians
Nurse Specialists
Proxy
Research
Research Personnel
Health

Cite this

Jack, B. A., Gambles, M., Murphy, D., Saltmarsh, P., & Ellershaw, J. E. (2004). A comparison of cancer patients’ and nurse specialists’ symptom assessment scores in a large acute UK NHS university hospital. Poster session presented at 3rd Research Forum of the European Association for Palliative Care, Stresa, Italy.
Jack, Barbara A. ; Gambles, M. ; Murphy, D. ; Saltmarsh, P. ; Ellershaw, J.E. / A comparison of cancer patients’ and nurse specialists’ symptom assessment scores in a large acute UK NHS university hospital. Poster session presented at 3rd Research Forum of the European Association for Palliative Care, Stresa, Italy.
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Jack, BA, Gambles, M, Murphy, D, Saltmarsh, P & Ellershaw, JE 2004, 'A comparison of cancer patients’ and nurse specialists’ symptom assessment scores in a large acute UK NHS university hospital' 3rd Research Forum of the European Association for Palliative Care, Stresa, Italy, 3/06/04 - 6/06/04, .

A comparison of cancer patients’ and nurse specialists’ symptom assessment scores in a large acute UK NHS university hospital. / Jack, Barbara A.; Gambles, M.; Murphy, D.; Saltmarsh, P.; Ellershaw, J.E.

2004. Poster session presented at 3rd Research Forum of the European Association for Palliative Care, Stresa, Italy.

Research output: Contribution to conferencePoster

TY - CONF

T1 - A comparison of cancer patients’ and nurse specialists’ symptom assessment scores in a large acute UK NHS university hospital

AU - Jack, Barbara A.

AU - Gambles, M.

AU - Murphy, D.

AU - Saltmarsh, P.

AU - Ellershaw, J.E.

PY - 2004

Y1 - 2004

N2 - Background: The delivery of effective symptom control at the end of life depends largely on appropriate assessment particularly that which prioritises information obtained directly from patients. However, direct patient assessment is not always possible, leaving clinicians to act as patient proxies in estimating levels of symptom severity to plan the delivery of appropriate care. The literature suggests some disparity exists between the assessments of health professionals and those of their patients. Aim: To establish the level of agreement between the ratings of patients and clinical nurse specialists (CNS) in a large acute UK NHS university hospital. Method: A quantitative case study design with a cross-over element is being employed. 60 patients referred to the palliative care team will be recruited. The initial 30 patients will receive a routine visit by a CNS who will complete the Palliative Care Assessment tool (PACA) using the information gained. These patients will then receive a visit (within 1 hour) from a researcher who will code their direct responses using the same tool. This procedure will be reversed for the remaining 30 patients to limit the potential for bias. The data will be analysed using Kappa to assess the level of agreement between scores. Discussion: This paper will consider the difficulties in establishing this type of research including ethical and practical challenges. Suggestions for ways to overcome these challenges will be discussed, along with the value of this type of research for palliative care.

AB - Background: The delivery of effective symptom control at the end of life depends largely on appropriate assessment particularly that which prioritises information obtained directly from patients. However, direct patient assessment is not always possible, leaving clinicians to act as patient proxies in estimating levels of symptom severity to plan the delivery of appropriate care. The literature suggests some disparity exists between the assessments of health professionals and those of their patients. Aim: To establish the level of agreement between the ratings of patients and clinical nurse specialists (CNS) in a large acute UK NHS university hospital. Method: A quantitative case study design with a cross-over element is being employed. 60 patients referred to the palliative care team will be recruited. The initial 30 patients will receive a routine visit by a CNS who will complete the Palliative Care Assessment tool (PACA) using the information gained. These patients will then receive a visit (within 1 hour) from a researcher who will code their direct responses using the same tool. This procedure will be reversed for the remaining 30 patients to limit the potential for bias. The data will be analysed using Kappa to assess the level of agreement between scores. Discussion: This paper will consider the difficulties in establishing this type of research including ethical and practical challenges. Suggestions for ways to overcome these challenges will be discussed, along with the value of this type of research for palliative care.

M3 - Poster

ER -

Jack BA, Gambles M, Murphy D, Saltmarsh P, Ellershaw JE. A comparison of cancer patients’ and nurse specialists’ symptom assessment scores in a large acute UK NHS university hospital. 2004. Poster session presented at 3rd Research Forum of the European Association for Palliative Care, Stresa, Italy.