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2019
69 Downloads (Pure)
Open Access
File
Deep learning
Motor Neuron Disease
expert
Disease
Delivery of Health Care
Bereavement
Referral and Consultation
Rehabilitation
Delivery of Health Care
Lung
Chronic Obstructive Pulmonary Disease
73 Downloads (Pure)
Open Access
File
Terminal Care
Teaching
Nurses
Education
Program Evaluation
Open Access
File
Thermometers
Motor Neuron Disease
Caregivers
Triage
England
27 Downloads (Pure)

The specification, acceptability and effectiveness of respite care and short breaks for young adults with complex healthcare needs: protocol for a mixed-methods systematic review

PILKINGTON, GERLINDE., KNIGHTING, KATHERINE., BRAY, LUCY., DOWNING, JULIA., JACK, BARBARA., MADEN, MICHELLE., MATEUS, CEU., NOYES, JANE., O'BRIEN, MARY., ROE, BRENDA., TSANG, ANTHONY. & SPENCER, SALLY., 30 Jun 2019, In : BMJ Open. 9, 6

Research output: Contribution to journalArticle

Open Access
File
Respite Care
Young Adult
Delivery of Health Care
Quality of Life
Qualitative Research
1 Citation (Scopus)
43 Downloads (Pure)
Open Access
File
Motor Neuron Disease
Ethics Committees
Grief
Life Change Events
Neurodegenerative Diseases
2018
1 Citation (Scopus)
60 Downloads (Pure)
Open Access
File
Advance Care Planning
Pediatrics
Delivery of Health Care
Hospices
Terminal Care
3 Citations (Scopus)
37 Downloads (Pure)
Open Access
File
Terminal Care
Nurses
Delivery of Health Care
Spirituality
Patient Care
39 Downloads (Pure)
Open Access
File
Hospices
Young Adult
Terminal Care
Hospice and Palliative Care Nursing
Respite Care

Piecing together the jigsaw: healthcare professionals' perceptions of pulmonary rehabilitation for patients with COPD.

Swift, E., O'Brien, M., Peter, S. & Kelly, C., 1 Dec 2018, p. A7-A8.

Research output: Contribution to conferenceSpeech

Chronic Obstructive Pulmonary Disease
Referral and Consultation
Rehabilitation
Delivery of Health Care
Lung
76 Downloads (Pure)
Open Access
File
home care
quality of life
art
health
vulnerability
1 Citation (Scopus)
56 Downloads (Pure)
Open Access
File
Advance Care Planning
Research
Information Storage and Retrieval
PubMed
MEDLINE
2 Citations (Scopus)
37 Downloads (Pure)

'The shock of diagnosis': Qualitative accounts from people with Motor Neurone Disease reflecting the need for more person-centred care.

Aoun, S. M., O'Brien, M., Breen, L. & O'Connor, M., 3 Feb 2018, In : Journal of the Neurological Sciences. 387, p. 80-84

Research output: Contribution to journalArticle

Open Access
File
Motor Neuron Disease
Shock
Practice Guidelines
Emotions
2016
Hospice Care
Hospices
Palliative Care
Caregivers
1 Downloads (Pure)
Open Access
File
stroke
caregiver
emotion
interview
inclusion
9 Citations (Scopus)
58 Downloads (Pure)
Open Access
File
Oxygen
Delivery of Health Care
Therapeutics
Dyspnea
Guidelines
25 Downloads (Pure)
Open Access
File
Bereavement
Motor Neuron Disease
Grief
Caregivers
Delivery of Health Care

Bereavement support for family carers of people living with Motor Neurone Disease

O'Brien, M., Kirkcaldy, A., Jack, B., Knighting, K. & Roe, B., 4 Feb 2016.

Research output: Contribution to conferencePoster

Disease

CP1- Investigating the use of digital legacies with people affected by MND (Poster Presentation)

Clabburn, O., O'Brien, M., Jack, B. & Knighting, K., 8 Dec 2016.

Research output: Contribution to conferencePoster

poster
Disease
human being
video
DVD
4 Citations (Scopus)
27 Downloads (Pure)

Development of a Rheumatology-specific Patient Concerns Inventory (PCI) and its use in the Rheumatology outpatient clinic setting

Ahmed, A. E., Lowe, D., Kirton, J. A., O'Brien, M., Mediana, A., Frankland, H., Bruce, H., Kennedy, T., Rogers, S. & Motts, R. J., 15 Feb 2016, In : The Journal of Rheumatology. 43, 4, p. 779-787

Research output: Contribution to journalArticle

Open Access
File
Rheumatology
Outpatients
Equipment and Supplies
Expert Testimony
Focus Groups

Emergency Care Impact Assessment (ECIA) Project. Claire House Children’s Hospice

Knighting, K., Mitchell, T., O'Brien, M. & Jack, B., 23 Feb 2016, Ormskirk, United Kingdom: EPRC.

Research output: Book/ReportProject report

Hospices
Emergency Medical Services
Thermometers
Terminal Care
Palliative Care
Caregivers
14 Citations (Scopus)
38 Downloads (Pure)
Open Access
File
Terminal Care
Home Care Services
Advance Care Planning
Quality of Health Care
National Health Programs
Hospice Care
Hospices
Emergency Medical Services
Palliative Care
Disease
video
DVD
human being
resources
Motor Neuron Disease
Grief
Palliative Care
Caregivers
Delivery of Health Care
2 Citations (Scopus)
28 Downloads (Pure)
File
Hospices
Respite Care
Emergency Medical Services
Hospice Care
Focus Groups
15 Citations (Scopus)
48 Downloads (Pure)
Open Access
File
Hospices
Home Care Services
Caregivers
Neoplasms
Hospice Care

The Carers’ Alert Thermometer (CAT): identifying the support needs of family carers of people living with MND (plwMND)

O'Brien, M., Knighting, K., Jack, B., Fairfield, H. & Drinkwater, N., 31 May 2016, (Accepted/In press).

Research output: Contribution to conferenceLecture

Thermometers
Caregivers

The Carers’ Alert Thermometer (CAT): Identifying The Support Needs Of Family Carers Of People Living With MND (plwMND)

O'Brien, M., Knighting, K., Jack, B., Fairfield, H. & Drinkwater, N., 6 Dec 2016.

Research output: Contribution to conferencePoster

Thermometers
Caregivers
Health
2015
17 Citations (Scopus)

Delivering compassionate care: the enablers and barriers.

Christiansen, A., O'Brien, M., Kirton, J., Zubairu, K. & Bray, L., 10 Sep 2015, In : British Journal of Nursing.

Research output: Contribution to journalArticle

Delivery of Health Care
Students
Health
Causality
England
10 Citations (Scopus)
36 Downloads (Pure)

Development of the Carers' Alert Thermometer (CAT) to identify family carers struggling with caring for someone dying at home: a mixed method consensus study

Knighting, K., O'Brien, M., Roe, B., Nolan, M., Lloyd-Williams, M., Gandy, R. & Jack, B., 3 May 2015, In : BMC Palliative Care. 14, 22, p. 1-13

Research output: Contribution to journalArticle

Open Access
File
Thermometers
Caregivers
Consensus
7 Citations (Scopus)
28 Downloads (Pure)
File
Palliative Care
Oxygen
Delivery of Health Care
Therapeutics
Dyspnea

Digital legacies for people affected by Motor Neurone Disease (MND)

Clabburn, O., O'Brien, M., Jack, B. & Knighting, K., 23 May 2015, (Accepted/In press).

Research output: Contribution to conferenceLecture

4 Downloads (Pure)
Open Access
File
Hospices
Emergency Medical Services
Respite Care
Hospice Care
Family Health
Open Access
File
Hospices
Emergency Medical Services
Respite Care
Hospice Care
Family Health
57 Downloads (Pure)

Exploring the impact on young people who are caring and grieving for a parent with motor neurone disease

Clabburn, O. & O'Brien, M., 27 Oct 2015, In : British Journal of Neuroscience Nursing. 11, 5, p. 243-248

Research output: Contribution to journalArticle

Open Access
File
Motor Neuron Disease
Caregivers
Interviews
Education
1 Citation (Scopus)
39 Downloads (Pure)
File
Motor Neuron Disease
Caregivers
Inpatients
Patient Care
Bereavement
6 Citations (Scopus)
35 Downloads (Pure)

Gaining consensus on family carer needs when caring for someone dying at home to develop the Carers’ Alert Thermometer (CAT): A modified Delphi study.

Knighting, K., O'Brien, M., Roe, B., Gandy, R., Lloyd-Williams, M., Nolan, M. & Jack, B., 20 Dec 2015, In : Journal of Advanced Nursing. 72, 1, p. 227-239

Research output: Contribution to journalArticle

Open Access
File
Delphi Technique
Thermometers
Caregivers
Consensus
Aptitude
poster
Disease
human being
social media
weblog
Motor Neuron Disease
Amyotrophic Lateral Sclerosis
Palliative Care
Brief Psychotherapy
Terminally Ill

Six Steps to Success Programme: Improving End of Life Care for Care Home Residents

O'Brien, M., Kirton, J., Knighting, K., Gandy, R., Roe, B. & Jack, B., May 2015.

Research output: Contribution to conferencePoster

Terminal Care
Home Care Services
Palliative Care
England
Quality of Life
3 Citations (Scopus)
54 Downloads (Pure)
File
Spirituality
Amyotrophic Lateral Sclerosis
Religious Philosophies
Personal Narratives
Terminal Care

"Support is too fragmented": the bereavement needs of carers and the presence of Prolonged Grief Disorder.

O'Brien, M., Jack, B., Kirkcaldy, A., Bell, S., Knighting, K. & Roe, B., May 2015.

Research output: Contribution to conferencePoster

Bereavement
Grief
Caregivers
Confusion
Terminal Care

"Support is too fragmented": the bereavement needs of carers and the presence of Prolonged Grief Disorder.

O'Brien, M., Kirkcaldy, A., Jack, B., Bell, S., Knighting, K. & Roe, B., 2015.

Research output: Contribution to conferencePoster

Bereavement
Grief
Caregivers
Focus Groups
Delivery of Health Care

The Carers' Alert Thermometer (CAT): an instrument to identify the family carers' needs whilst providing end of life care in the home

Knighting, K., O'Brien, M., Roe, B., Nolan, M., Lloyd-Williams, M., Gandy, R., Pine, K. & Jack, B., May 2015.

Research output: Contribution to conferencePoster

Thermometers
Terminal Care
Caregivers
Research
2014

Bereavement support needs of family carers of people with Motor Nerone Disease (MND)

O'Brien, M., Kirkcaldy, A., Jack, B., Bell, S., Knighting, K. & Roe, B., Nov 2014, p. 107-127. 21 p.

Research output: Contribution to conferencePoster

Bereavement
Caregivers
Terminal Care
Health Care Costs
Suicide

Clarity through the Kaleidoscope: Gaining Consensus on the Main Causes of Carer Burden from Professional and Carer Perspectives

Knighting, K., Jack, B., Roe, B., O'Brien, M., Nolan, M., Lloyd-Williams, M., Pine, K. & Gandy, R., Mar 2014, p. A5.2-A5.

Research output: Contribution to conferencePaper

Caregivers
Consensus
Thermometers
Delivery of Health Care
Aptitude
Health Occupations
Students
Delivery of Health Care