Personal profile
Biography
Bernie is a children’s nurse who trained at the Hospital for Sick Children, Great Ormond Street, London. Post-qualification she worked clinically within children’s surgery, neonatal intensive care, children’s high dependency and children’s intensive care settings in various hospitals in the North West of England. Whilst in practice she found she had more questions than answers; this was the start of a research career, although she did not know this at the time. She undertook her undergraduate degree and her PhD at Manchester Metropolitan University (MMU). After leaving clinical practice she worked in Higher Education at MMU and the University of Central Lancashire. She was the Director of the Children’s Nursing Research Unit (CNRU) at Alder Hey Children’s NHS Foundation Trust from 2008-2021.
Bernie moved to Edge Hill University in February 2016 to contribute to the rapidly growing Children, Young People and Families Research theme.
Bernie absolutely believes that research can be fun and is good for the soul, not least because it provides many challenges and opportunities for problem-solving. She tries to pass on this passion about research to ‘her’ doctoral students, who are undertaking a wide range of child and family related projects both in the UK and abroad. Bernie sees her role as Director of Studies as extremely rewarding and she loves providing guidance and support to her students and seeing them and their research projects develop. She is firmly committed to ensuring that students have a good experience of undertaking their research. She has 34 successful PhD completions.
Bernie has published around 200 peer-reviewed articles and more than 60 editorials. She has written or edited books on pain and children’s nursing and contributed chapters to books. She was the Editor-in-Chief for the Journal of Child Health Care (Sage Publications) for 23 years and stepped down from the role in 2018. Bernie is a Fellow of the Royal College of Nursing and a Fellow of the Higher Education Academy.
Bernie is President of the Association of British Paediatric Nurses. She is a founder member of the International Network of Child and Family Centred Care and co-founder of the Somatic Practice and Chronic Pain Network.
Research interests
Bernie’s research focuses on children and young people whose lives are disrupted by pain, illness, disability, complex health care needs and disadvantage, and the ways in which this affects their parents, brothers and sisters and family life. Her work aims to explore issues of importance to children, young people and their families to improve their everyday lives and the treatment provided and services they receive. Bernie’s research interests also encompass interventions that aim to promote best practice such as paediatric early warning scoring.
Much of Bernie’s research is qualitative; in particular her work is narrative, appreciative, participatory and arts/activities-based. She utilises a range of data-generation techniques consonant with children’s ways of expression, including visual art-based techniques and photography as well as interviews, focus groups and workshops. She works closely with children and families at all stages of the research process to ensure that her work is not only robust but is also grounded in the lives of the participants.
She is passionate about undertaking, implementing and disseminating research as she believes it can and does contribute to making things better for children and their families. She is interested in using innovative ways of disseminating work including the use of dance, performance, animation and the power of the written and spoken word.
Bernie’s current work includes studies addressing: holding children for procedures; romantic relationships and young people with chronic pain; somatic practice and chronic pain; remote consutations and children with arthritis or asthma; early warning systems for critical deterioration of children in hospital; sleep and children with epilepsy; parent champions and bronchiolitis; and child centred care.
Education/Academic qualification
PGCE Postgraduate Research Supervision, PGCert
… → 2004
PhD, Manchester Metropolitan University
… → 1995
PGCE Education (Further Education) & RNT, Other
… → 1991
Nursing Studies, BSc
… → 1989
Other positions
Adjunct Professor, Auckland University of Technology
2018 → …
Clinical Professor, University of Tasmania
2011 → …
Director of the Children’s Nursing Research Unit (CNRU), Alder Hey Children's NHS Foundation Trust
1 Sept 2008 → 2021
Professor of Children's Nursing, University of Central Lancashire
2000 → 2016
Senior Lecturer, Manchester Metropolitan University
1989 → 2000
Keywords
- RT Nursing
- Pain
- Children and young people's voices
- Parent
- R Medicine
- Deterioration
- Early warning scores
Research Groups
- Children and Young People Research Network
Fingerprint
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Collaborations and top research areas from the last five years
Research output
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Cultural reproduction of knowledge and identity: Impact of a competency-based curriculum on knowledge engagement and identity construction in second year undergraduate nursing students in England – A constructivist grounded theory study
CONNOR, K. & CARTER, B., 28 Jan 2026, In: Nurse Education in Practice. 92, p. 1-8 8 p., 104741.Research output: Contribution to journal › Article (journal) › peer-review
Open AccessFile7 Downloads (Pure) -
Measures of identity in adolescents/young adults with long-term physical health conditions: A systematic review
Rugg, T., Caes, L., Eccleston, C., CARTER, B., Gauntlett-Gilbert, J., Pain, C. & Jordan, A., 13 Feb 2026, In: Journal of Pediatric Psychology. p. 1-26 jsag001.Research output: Contribution to journal › Article (journal) › peer-review
Open AccessFile -
Randomised Controlled Trial of Online Behavioural Sleep Intervention for Children with Epilepsy
Gringras, P., Anilkumar, A., BRAY, L., CARTER, B., Coffey, T., Cook, G., Hardy, W. A. S., Hughes, D., Lalnunhlimi, S., Morris, C., SARON, H., Stibbs-Eaton, L., Tudor-Smith, C., Wiggs, L. & Pal, D., 7 Jan 2026, In: Scientific Reports. 15, 1, p. 1-14 14 p., 44238.Research output: Contribution to journal › Article (journal) › peer-review
Open AccessFile1 Downloads (Pure) -
‘In the midst of a thunderstorm’: young people’s experiences of physical restraint in inpatient mental health services in the UK"
Nielson, S., BRAY, L., CARTER, B. & KIERNAN, J., 28 Feb 2026, In: International Journal of Mental Health Nursing. 35, 1, p. 1-11 11 p.Research output: Contribution to journal › Article (journal) › peer-review
Open AccessFile8 Downloads (Pure) -
A protocol for an international modified e(lectronic)-Delphi study to build consensus on the assessment of breakthrough pain in typically developing children and young people (8-25 years) with life-limiting or life-threatening conditions
Liossi, C., Turner, G., Anderson , A.-K., Bailey, S., Hain, R., Schoth, D. E., Morris, L., Harrop, E., Johnson, M., Mott, C., Hayden, J., Rajapakse, D., CARTER, B. & Renton, K., 2 Apr 2025, 12 p. Open Science Framework (OSF).Research output: Other contribution
Open AccessFile8 Downloads (Pure)
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Dietary therapy to improve nutrition and gut health in paediatric Crohn’s disease; a feasibility study
BRAY, L. (CoI), CARTER, B. (CoI) & Allen, S. (PI)
Project: Research
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Screening for Chemotherapy Induced Peripheral neuropathy: Determining the Effectiveness of an Early Identification Screening Programme
CARTER, B. (CoI), Hartley, H. (PI), Pizer, B. (PI) & Gildersleve, K. (CoI)
1/04/23 → 30/09/24
Project: Research
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Parental sleep-related practices and child sleep problems: A systematic review.
Cook, G. (PI), Wiggs, L. (CoI), Southam, S. (CoI) & CARTER, B. (CoI)
1/08/22 → 30/04/23
Project: Research
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Evaluation of the Kentown Children's Palliative Care Programme
KNIGHTING, K. (PI), CARTER, B. (CoI), KAEHNE, A. (CoI) & FEATHER, J. (CoI)
6/06/22 → 31/08/25
Project: Research
Activities
- 11 Research degree supervision
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PhD supervision: Ying-Chih Chen
CARTER, B. (Director of Studies) & LAMPH, G. (Supervisor)
2023 → 2027Activity: Other activity types › Research degree supervision
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PhD supervision: External Student
CARTER, B. (Supervisor), Foster, R. (Director of Studies) & O'Brien, T. (Supervisor)
2021 → 2024Activity: Other activity types › Research degree supervision
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PhD supervision: External Student
CARTER, B. (Supervisor), Carrol, E. (Supervisor) & Taylor-Robinson, D. (Director of Studies)
Sept 2020 → …Activity: Other activity types › Research degree supervision
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PhD Supervision: External Student
CARTER, B. (Supervisor), Marsden, J. (Director of Studies) & Latour, J. (Supervisor)
May 2018 → 2023Activity: Other activity types › Research degree supervision
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PhD Supervision: Beth Gibson (awarded)
CARTER, B. (Director of Studies), BLAKE, L. (Supervisor), Peak, M. (Supervisor) & Bracken, L. (Supervisor)
6 Sept 2017 → 5 Sept 2020Activity: Other activity types › Research degree supervision